A blog about my adventures as a grief warrior

Category: Shared Grief (Page 10 of 21)

Finding Your New Normal

At a recent check-up, my nurse expressed I was healing slowly but assured me things would get back to normal in a month or two.  I left the hospital thinking how many times I have heard this. “When things are normal.” What does that even mean?

In grief, normal leaves our lives the day our loved one dies. Those around us wait, hope, and encourage us to get back to normal. They want, sometimes need us to be the way we were.  Change shakes up normal. That can be scary for everyone. It also puts an invisible guilt on those of us trying to get back to normal but not able to; we begin to think what’s wrong with me.

I started to remember about how futile my attempt to get back to normal has been. First with my grief and now my current physical health. Nothing will ever be normal again. Normal, for me, was killed four years ago and if I had any hope to believe I would get it back, that was removed with a bilateral mastectomy.  I am so far away from the normal I lived before all this, that the idea of ever having it back angers me because I know it is impossible.  It brings up the questions all over again of why and life plans and how do I get past this? Typical questions anyone of us ponders when faced with an unwelcomed twist.  

The truth is there is no normal after a major change. It exits loudly and with no compassion that you yearn for things to be the same. Life becomes so different from what normal was that any resemblance of before is lost.  This is a common feeling for those having no choice but to face the changes fate hands them that are life-altering.

So, let’s quit trying to be normal. We are not the same person that was aligned with that normal. We are different now. In our grief journey we are discovering new things about ourselves. We are finding new ways to cope. We understand the need for change.  Change from what was normal.  Changes that enable us to survive and hopefully, one day, thrive. Let’s take this empty hole, this day, this life and let’s look for what can be molded into a new, and yes different, but tolerable normal. 

What would that look like for you? What little things could you bring into your daily routine that eases your pain and can become a new normal. Grief trains us to take small steps. What small steps can you make towards a new normal? We can look at this as an opportunity to bring into our lives pieces of comfort that we didn’t before because of a hundred excuses. Throw away those now. We have a solid excuse to create a new normal.  Take what life has given to you, and design a new normal that honors you, honors your loved ones. Find a normal that fits the changes you did not ask for. Maybe with a little faith your new normal will have less stress, more peace, and a bit of joy.  

Thanksgiving 2022

I have a lot to be thankful for. We all do. So, I am taking today to not concentrate on the pain of my body or the losses that have crippled me. Instead, I am going to watch my family enjoy gathering for turkey and the traditions that accompany it.

I am going to relish in the understanding that my loved ones from heaven join us today. It is a beautiful sunny afternoon that beckons healing.

I wish for you, a day of peace and connection. I wish for that to continue throughout the year.

How lucky are we to have, if only one, another to love and care for us. I am blessed to have an entire tribe. It is what keeps me breathing. Thank you.

The Cloak of Grief is Anger

There is always supposed to be more time. I’ll see you soon. I’ll make that appointment. We will get to that tomorrow.  And then tomorrow never comes. Or it comes with a death sentence, and you are left having a list of things to be done before ‘times up’ and it leaves no room for what you wanted to do.

Our friend has brain cancer. And not a great prognosis even with his kick-ass 200% positivity. So, we, the recovery team as he calls us, are left to resolve a hundred things on his behalf and put into place care for now and for after. His two children, each with their own families and work commitments want to be with their dad and feel their grief. But the task list takes them away from that.  And replaces it with grief’s cloak. Anger.

Anger comes when your soul wants one thing, your heart needs one thing and life dictates another. I watch his children, worried about the unknown and scared for their father. They have stepped up.  Big time. Life doesn’t seem fair to them now.  And it isn’t. “We have so much to still share with Dad”. That won’t happen.  And they know this but between doctors and surgery and treatment and accommodations and paperwork, there is no time to feel this. Time. The elusive, non-refundable gift has been given to them, with an expiry date.

We sit with his children and the long list of what needs to be done.  We organize who can do what and pull in friends to support this. We talk with our friend about dying, about last wishes and we, together make a plan.  It brings a bit of relief to everyone. It gives us some control, some hope that we may be able to share a life, however short, that is filled with love and time together.

We now will go about implementing our strategy, with a plan b to create as we understand nothing goes according to the original ideals. We find comfort in the awareness that we are in this together and we have each other to lean on. All these things help. Yesterday, my friend told me his son said something profound. It was a short sentence that summed up our entire life.  It identified our anger. He said, “Dad, I’m just sad.”

Traditions, The Glue Holding Us Together

My daughter, Payton, and I have an annual tradition to make pickles and jam.  Life has recently gotten too busy. Between what must be done and what should be done, we have had little chance to relax. So, we missed the season of getting pickling cucumbers in time to make our famous dill pickles.  This year we opted for cranberry relish, zucchini relish and a whiskey peach jam.

The truth is I am with Payton a lot. Time together is our tradition.  Zane called us two old ladies as we enjoy shopping, patio hopping, Netflix binges, crafts and cooking together. She is a best friend. Being acutely aware of the pain of loss, traditions with my daughter have become the priority in my life. I have watched her, over the last years, deal with the loss of her big brother and realized how important that these bittersweet traditions we share are. They are the glue that keeps us from falling apart with grief.

This got me thinking, what can we do to revel in the traditions we have. How can we celebrate with our children who live on the other realm. We can tweak the traditions to fit around our grief.  Adding something new or modifying how it is done. We can create a whole new tradition. This all takes practice. Somethings help, somethings don’t. Each year you can refine your traditions to be a little more comforting.  Traditions are long-term, passed down ideals which gives us the freedom to change them up. With loss, traditions need to become events that also honor our loved ones.

Let’s look at traditions and ponder how can we fill these with the memories of our loved one.  What can we incorporate that will acknowledge their likes, their personality. Let’s go a step further and look at the other identifiable holidays that come along each year and what can we do with them to bring to life the memory of our beloved? Why can’t we have a calendar filled with celebrations that we enjoy with family and friends that include, that honor, those we have lost.

Somewhere between the zucchini draining and the peaches boiling, Payton and I talked about who we wanted to share our jars with.  A new part of our fall tradition; someone will receive a jar that would have been devoured by Zane. 

I am blessed to have such a wonderful young woman to create and celebrate traditions with. Her loving heart has a desire to include and commemorate, those that are here and those who should be. I know her brother is smiling as we pour a little of his favorite whiskey into the peach jam.  He will always be a part of our traditions.

Keys to Grief

Grief comes in many forms and many levels of intensity. Grief is a result of loss and there are losses almost daily that we accept, sometimes without even recognizing it. Until they accumulate and you are not feeling well or can’t focus and not understanding why. Such was this week.

We drove to British Columbia to see friends who are not aging well. In our conversation with them I heard the loss of hope in my friend as he talked about not having the capacity to be the person he once was. No one likes bad change. And his physical issues are not good. But as we spoke, I realized that sometimes we have expectations to be the person we were decades ago, or days ago, from what life has handed us. Adaptation is key to happiness.

We came home to news that another close friend had stumbled and thinking it was a stroke, his children took him to the hospital.  What they found was a large cancerous tumor in his brain. He underwent surgery the next day and the doctors have told us there will be a long road to recovery and a much shorter life expectancy than we had thought would be his life plan. Hope is key to resiliency.

Over cocktails, another friend told me she was diagnosed with cancer and will be having her toe amputated in hopes that it has not spread. We shared feelings about the realism of aging and how everything happens for a reason. God only knows what the reasons are this week. Trust is key to strength.

What I do know is that my plate is full. I am connected, by heart and soul to these friends. So, when falling to sleep is not happening and my body hurts, I know that I am grieving for the loss.  The loss of what was and the loss of what is coming.

It is an unsettling feeling, empty of promise with no clear predictions. Such is life. Such is love. Such is loss. And what I know now is that grief is also a part of life and love and loss. Acceptance is key to courage.  

Road Signs that Increase Grief

In May when we visited friends in Kelowna, I told my husband that it was my last time driving there. I wasn’t sure if I hated the drive because of the construction detour or the fact we brought our dog who howled the entire 7 hours. Well, we are back, driving west to see our friends.  This time, there was no detour, and we left the dog behind, and I figured out why I hate travelling by car. It’s the road signs.  Specifically, two types of road signs.

The first sign are the crosses. The sign that someone else lost a loved one to a highway crash. Someone else walks this journey beside me. Even though I know not of them, I sigh, whispering “I am so sorry” under my breath.  I can’t enjoy the majestic scenery my husband reminds me of.  We are in God’s Country.  And where was God then?

The second, and more personal, are the dozens of road signs stating, “Passing Lane 2KM”. You wait for these expanded areas to pass slower moving vehicles safely.  Here, you are not as likely to have an oncoming vehicle in your lane.  It is this sign that was at Zane’s crash site.  It haunts me to this day; 2 km and my boy would have been safe.  2km was all he had to travel before the divided highway would have kept him apart from the other driver crossing the centre line. 2km and he may have survived. Every time we drive by one of these signs, I can feel my heart explode and my hands grip the wheel tighter and my jaw clenches. I am a ball of angry bitter tension by the time we reach our destination.  These road signs kill me emotionally.

It’s true that our life is all about bittersweet.  When I see a feather or balloon, a sweet sign from Zane, I am elated. Connected. When I see a bitter sign, like one of these road signs, I am reminded of my truth. The ugly truth. A grief warrior’s life is a yin and yang of bitter and sweet. It is part of grief. I must remember this. The bitter signs are just that.  They are signs of what happened. They are part of the story but not the whole story.  And I can choose which signs I want to focus on, the ones that elate me or those that crush me.

Our trip home I will experiment with this concept. I will search for the sweet signs that I know are also there. I will watch the skies and the countryside and the mountains for clues that Zane is with me. This is an exercise in choosing how I look at life and I wish to see it with my boy, riding next to me, past the signs that repeat he is not physically here.

Goals For Our Grief

With September, comes the rush of more work, school, and busier times. We know this. Summer leaves behind the long days of less. It is a time to plan as well. I recently read, for mothers especially, that September can be a quiet but impactful opportunity to look at your life. And to plan your goals.

January is when we make new year resolutions; it is a time where we are exhausted and needing to rest and perhaps why so many of our goals fail. If we choose to look at what we want, what we need, in September, our perspective might be different. If we use this month to focus on what goals would support our grief, perhaps the upcoming months won’t be as harsh. September goals are about self care.

What would you like to see this upcoming year for just you. Between now, when the leaves begin to change colors and next year’s summer heat? What would you like to bring into your life and what would you like to remove? When we are grieving, the answers seem obvious. I want my child back. I don’t want to feel like this. I want to have peace, maybe a little joy. We feel it’s impossible. This thinking stops us from healing.

Grief will never leave and because of that we must look at how we live with it. What do we do to include it as the big part of our lives it will always be. Our goals need to include our grief.

In the quiet morning hours, before the drama of life unfolds, what if we sat with a journal and meditated about what we need this year to live with our grief. What would that look like for you? Would it include more time alone or more time with friends? Would it include a trip or a move or just more walks? What would you like to incorporate or remove or change with the upcoming holidays. What do you need that would support your grief? Start writing your thoughts.

September goals are the secret wishes of your heart. They do not need to be shared, no one knows we have made them.  They are between you and God. Quiet prayers of what we have discovered through journalling to try. Just try. 

And what if these feelings were heard by the Universe? What then? Could we find the energy to chase these desires? Would we accept, if what we dreamed about, approached us? We must be open to such happenings. We must do the work to bring to life the ideas we have recorded in our journal.

Identifying and working towards the goals of what is needed to build a life around grief is good mourning. Only by searching our hearts for new ways or modified ways to integrate our grief, will we then know what may bring us comfort.

Our Part In The Overdose Crisis

One of the many events that the grief community participate in is International Overdose Awareness Day, held August 31st.  This day remembers, with love, those who have died and acknowledges the pain felt by family and friends left behind.  It is a day that reminds us that drug overdose is the world’s worst public health crisis. And what are we doing about it?

I had a colleague say if you want to solve the problem, don’t stand on the shore, and wonder why the fish are dying. Travel up the river and see where the problem begins.

What would we find up the river of a drug overdose? Would we see a health care system that has failed? Would we see a community that is judgemental and non-accepting of diversity? Would we see fear and loneliness of those seeking refuge?

No child says, “when I grow up, I want to have a drug overdose”. And yet the Centre for Disease Control & Prevention reports in 2020 over 93,000 people lost their life to overdose. How can we, as a society, continue to sit quietly?

I don’t know of one person whose life has not been touched by drug overdose. A neighbor, a school chum, a co-worker, a family member. And God help us when it is your child. The stories all have a common thread; there was a physical or mental incident, once or many times, the person sought relief in a drug. It does not matter if that drug was alcohol, or pain killers, or heroin. When an overdose occurs, it could be a moment of grace and salvation, but often, it is a permanent injury or sudden death.

The stigma a parent has with the death of a child by overdose is one of shame. Society whispers ‘oh that is the one whose child was a drug addict’ as if somehow their life could not be touched by such tragedy. And not all drug overdoses are by addicts. Not the point. The point is we have a crisis that affects us all.

My belief is this is the first step. We must agree that we are all a part of this crisis, and we need to work together to fix it. There is no shame or blame around the loss of a child by overdose. A loss is a loss. Every death is a tragedy.  

We must pull our head out from the sand and acknowledge we are all vulnerable to this crisis. We must open our heart to others and embrace our differences.

We must hold our health care system accountable for what is dispensed and how. We must demand a stronger focus on the resources needed for alternative treatments, pre-assessments, and support.

Most importantly we must hold tight to each other. Keep talking, listen to one another, be there for one another.  We must remember that we are all connected. Only then will the needed attention to this crisis be delivered.

Celebrating You for 31 Years

Yesterday we gathered in our daughter’s back yard with family and friends to celebrate Zane’s 31st birthday. I found it hard to smile and celebrate a ‘happy’ birthday to a situation that is anything but happy. Then I read somewhere that birthdays are a way to celebrate the number of years that this person has been. Period.  Their birth brought their soul here in a physical form. Death removes only the body. Their soul is still alive and well. It is the soul we celebrate. I liked this advice. Zane was killed at 26 but his soul has been with us now for 31 years. 

So, every year I create something that celebrates Zane, a simple activity that his friends can do to help honor his spirit. The first year we handed out pay-it-forward cards, asking his friends to buy a stranger a drink and give the card to the recipient so they knew why they had received a free drink.  The second year we wrote wishes on ribbons and tied them to the tree that Zane had planted when he was in grade three. The third year was Zane’s 30th birthday and we had a bingo game made, each square listing an activity that Zane enjoyed, challenging his friends to complete the 30 squares over the year for Zane. This year with many of his friends now traveling for a holiday or a destination wedding, we bought luggage tags with a picture of Zane, asking them to take “Zane along on their adventures” and send us back a picture, postcard, or sticker. I plan to make a collage of all the places Zane travels in spirit with his family and friends.

In the grief community, honoring is essential to good mourning. It is the way we continue a relationship with our loved ones. It is how we pay respect to their life here on earth. It is how we remember. Sharing these celebratory acts with friends, asking them to be a part of how you honor your loved one, enables us all to feel linked together.

Birthdays are supposed to be personal.  We are celebrating a specific person on that day, thus finding ways to honor them that reflects their personality, their hobbies, or desires before they departed is an important way to commemorate them.

Birthdays are difficult, but every day is difficult, so I encourage you to take your loved one’s birthday as a day to smile through the tears and bring what they enjoyed in this life into your life. And to share it. Celebrate who they were, are, and will always be.

To Zane, on the Fourth Anniversary

Dear Zane,

It has been four years today,

an indescribable hell

trying to live in this realm

knowing you live in the other

It has been four years of ugly rituals

like crying every morning

and screaming every day in the car

It has been four years of not believing, believing

And then not believing again

It has been four years of mockery

watching my friends’ kids do, be, experience

what was to be for you

It has been four years of anger

Not able to comfort your sister

Or any of us from this pain…

It has also been four years of honoring you,

asserting you are still here,

friends and family include you

in our daily lives

which brings some peace

as a mother’s greatest fear is 

there will come a time

when life goes on without you.

It has been four years learning

that the diminutive conciliation

of holding your hand

are unexpected symbols,

enigmatic Instagram posts

feathers on our path

dragonfly on the window

bubbles and balloons

signs that I cling to

as oxygen, for my own survival

There is also the Universe’s gift,

the subconscious reality through nighttime slumber

where I can feel your hug, hear your laugh 

our moonlight conversations,

when morning arrives,

my broken heart holds tight to

giving the energy I need to walk another day

It has been four years today, my sweet boy

and if I have understood only one thing

It is that my love for you is endless

as are the tears I cry.

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