A blog about my adventures as a grief warrior

Category: Shared Grief (Page 7 of 21)

First Lessons of a Death Diva

They say when you experience deep grief, you find yourself. Your truth north is formed. I’m not sure if that is right but it might explain my calling to be a Death Doula. Or as my good friend told me, “You are not a doula, you are a Diva…claim it”.  That makes me giggle. I succumbed to this invisible push and signed up for certification training just before my brother-in-law was told he had advanced cancer. He became my practicum to which he took his last breath shortly after I graduated. I learned a lot and since his passing a year ago, I have had opportunities to practice my new skill. It has been bittersweet learning as they have all been close friends.

The biggest lesson I have learned is that no one wants to talk about death until it is too late. I have a friend who kept procrastinating the conversation and now she isn’t cognizant to have a meaningful one.  Discussions about death are hard but necessary. It includes the answers to obvious questions; do I want to be resuscitated, cremated, or buried etc. But the questions that I feel are as important, if not more, are the ones about after-life. Is it ok to keep some of the ashes for memory jewelry? What specifics do you want at your funeral? What do you want us to do to honor and remember you?  My brother-in-law had us promise, among a few other things, that there would always be pineapple torte eaten on his birthday.  These answers from our loved one, before they depart, bring us solace when they do die. It gives credence to the fact that we are doing the right thing for them.  There are fewer regrets. It is why these conversations are essential but sadly, seldom had to the degree they deserve.

The next lesson is all about anticipatory grief. When one is dying, we begin grieving.  And grief brings out the best and the worst in a person. I have been snapped at, cried on, and asked to do a multitude of mundane tasks.  I was asked to be at home or at the hospital and then told to get out. I have seen families split apart over the details of care and after-life desires. Anticipatory grief is grieving without the comfort of shock.  It is raw and ugly. And no one escapes it. It includes judging, blaming, assumptions and irrationality. It is the hardest part of this new role when I want everyone to be ok but that is impossible.  

The third lesson I have learned (in this early journey I am on) is that self-care becomes a stranger. You wish to be with your loved one every second. The sounds and disturbances of a hospital or home care create an environment that does not compute rest for those sitting next to their loved one. Showers, meals, and routine go out the window fast. Adrenaline is the ingredient that keeps you going.

It was 11:00 am when I was buying tea for a friend who had been with his partner all night.  The young cashier looked at me and asked, “have you had breakfast?” I said, “what do you mean?” He said, “iced tea at 11:00 am…did you eat or is this your breakfast and probably your lunch?” I stopped to think.  No, he was wrong, but I appreciated his thoughtfulness. And the reminder that we must care for ourselves so that we can fully care for our loved ones.

I value this new role of death diva. I want to help, to be there as a source of comfort in whatever way I can. It is a privilege to be a part of readying one to travel to the other realm, to listen to their needs and to assure them that we will fulfill their hopes and dreams as best we can and support their family and friends left behind. It brings peace to both parties. The dying feel sanctioned that their last wishes are respected. Those left behind are empowered knowing, not guessing, what their loved one wants. It is the foundation to enable you to carry your grief better, in the confirmation that you are doing what your loved one requested.  That is my highest and most valuable message as I explore this path towards my north star.  

Three Cheers for Fathers

I was blessed to have had 3 fathers share this life with me.  Mine, my Godfather, and my father-in-law. Each one I had a very special relationship with that I carry with me long after they have gone. Each man was very different in his career choice, hobbies, and passions. The commonality was each of them was insightful, giving, and protective of those they loved. They did not say too much and did not say it loud.  So, when they talked, if you listened, lessons abound. And those lessons, are part of who I am today.

My father worried that God would punish any of his sins through me. I was his first ‘little girl’ and his inability to spare me from harmful experiences molded him into a private detective that cared for me behind the scenes.  He was my guardian angel. He was my first experience of kindness.  Never did a stranger cross his path that he did not receive something from my father. He was the epitome of ‘do unto others as you would like them do to you’. My desire to nurture comes from him.

My Godfather kept me out of trouble, big and small. I was his girl that met him for lunches and shared my woes and found solutions in each conversation we shared. He stood next to me when I was threatened and guided me to safety. He was my shelter from the storms. He was my first experience of justice. Every situation he faced, he did with integrity to which he practiced in his career and his personal life. He was the epitome of ‘by the Grace of God, go I’. I watched him handle his own battles without a complaint and with the power of a gentle man.  My desire to understand comes from him.

My father-in-law took philosophy to a higher level. I was his girl that we could share truths with about life, family, and ourselves. Our heart shared conversations about the things that mattered were a special part of our visits. His sense of humor hugged you like a cozy blanket while your soul giggled. He was my shining light. He was my first experience of self. Never did he condemn another’s actions or dreams. In fact the opposite, he encouraged one to follow their own path with honesty and goodness. He exhibited that in his own behaviors.  He was the epitome of ‘to your own self be true’. My desire for discovery comes from him.

I think of each of them every day.  Our families celebrate them often. It is hard to believe that they are not still physically here. But I guess that is the thing about fathers. Their absence is softened by the knowledge that their love is imprinted on our hearts. Their lessons a part of our makeup. Our souls know that they will always watch over us. We will always be, ‘their little girl’.

Slow Down, Your Soul Is Speaking

If you’re like me, you don’t slow down. I relish over setting goals, project planning, and task lists. I am an A-type personality that has been raised and has lived as an extrovert for sixty years.  It was only in the last decade that I discovered I am an introvert. And accordingly, is the foundation of why I am an emotional, physical, and spiritual mess.

All my loved ones have begged me to slow down. Including Zane. In the days after Zane was killed, when my grief brought me to my knees every waking moment, I wanted to be alone. I wanted to not have to talk to anyone or listen to them or care for them.  I didn’t want to slow down, I wanted to stop. I wanted just to be by myself. Of course, that did not happen, in fact quite the opposite. I ended up with more family and friends and social events that I was “obliged” to attend that my physical health got worse. Life did not slow down, it moved faster with work, moves, deaths, travel, and at the end of the day, cancer arrived.

I told my family that I believe my diagnosis was because the angels are fed up with me not listening to what I need so have given me a life-threatening wake up call. SLOW DOWN. And I did; but as a properly raised extrovert, I did for just a wee bit.  Not long enough to correctly heal nor long enough to make it a lifestyle. So, no surprise that 6 months later, I find myself back in the doctor’s office with complications that require more tests, x-rays, and medications with scary side effects. Will I ever learn?

Here’s the thing. My therapist told me that when we are grieving, time alone to sit with our pain is essential. What she didn’t tell me, or I didn’t hear, was that sitting alone brought me closer to Zane. When I take the time to slow down and retreat, I feel my energy.  I receive more signs. I have more dreams. I am in less pain. Time alone to sit with my thoughts and dreams recharges me to be able to be there for my family and friends better. Including my son.

I’m not sure why when we feel good, we forget to slow down.  When the energy is there, we often keep running until it is depleted. A friend told me that when illness does not show on the outside, it gives people reason to think you are ok and expect more of you than if you were visibly ill.  And we don’t help ourselves by saying, “I’m ok” when we know we are not. A-type personalities are great at faking being ok. Whether the struggle is mental or physical or both, we soldier on with a tough guy attitude that people learn to count on.

My nephew, struggling with his own health, wears a jacket that has imprinted on it, “Everything’s OK”. He wears it because of the irony of this statement. I laughed the first time I saw him wear it. He smiled and said, “right?” We get each other.  If I was honest, my jacket would bear the statement, “I’m not ok, so don’t ask”. I hate having to explain why or reassuring those asking “it will be ok” when I don’t know.

All that said, we need to be honest with ourselves and others when we are not ok. We need to be comfortable with the times we are not ok. We need to quit pushing ourselves and pretending. We need to set aside time to sit alone and heal. Whether you are an extrovert or an introvert, slowing down and taking time to be alone is essential to feeling our best and to staying connected to those we love here and on the other realm.

It’s Going To Be OK

There were five of us diagnosed with cancer over the last year. Two with a brain tumor, one with melanoma, one with prostate and me with breast. It was another ‘thing’ that brought us closer. We all are good patients; listening, following doctor orders and so far, we all are ok. Until the phone rang.

I remember sitting in the doctor’s office with her. She was scared as an infection was now being biopsied. I held her hand. “It’s going to be ok.”  We found out it was skin cancer. Surgery came.  It going to be ok. Then more was found in the lymph nodes. It’s going to be ok. More surgery. It’s going to be ok. Then a lump appeared. It’s going to be ok. And then the lump grew. And now the treatment is radiation to ensure the lump doesn’t blow up until they figure it out. The answers will come next week.

While we wait, her sweet husband is calling all of us. It’s going to be ok, has turned to, “It’s not looking good”. And each of us holds our breath and sends prayers to the heavens. How is this possible? It was just 6 months ago we were shaking our booty to Pit Bull at her birthday party. A milestone party where we laughed at how she could shake it and would be shaking it for decades longer. What the hell happened?  How did we go from that to this.

The sudden death of our children (3 of the 5 of us have lost a child), has taught us that life is not always how we wish. Through our children’s death we have learned to be warriors. But when ill health hits us personally, the art of being a warrior takes on a new meaning. A physical fight needs to join the emotional battle we endure every day. We have so much more living to do.  Not for us.  No, this is an unselfish request, plea to the Universe that we have another child, a pet, a spouse, more family…we have a ton of reasons as to why we must still be here.  We are not ready to go because we know we are still needed.  Our loved ones have already lost, and we want to spare them the pain of losing more.

These earthly emotions bring energy to your battle, strength to withstand cancer treatments and the pain that has you popping pills every four hours.  It brings that smile to your face that your family so desperately needs to see. It also brings you closer to fate. The closer we get to our fate, the clearer we become of what is happening.  Bravery becomes the mask worn.

Our group is blessed with the belief that we do not die. We live on. This doesn’t mean that when death comes close, it becomes more comfortable. No. It becomes the energy for our life’s task list. The clarity to see what still needs to be done, what can be released, and what we need to delegate becomes the focus. It is not giving up; it is getting real. We do it with the hope that there is a miracle still in the bag. It is demanding more time to ensure that when this life is completed, we pass with a feeling of peace that, “It’s going to be ok”.

That has now become the wish of my friend. And for the five of us, our friends and family, the term “FU** Cancer!” is shouted in unison. And shouted so loud that the heavens rumble.  

A Tree Sent to Heaven

Every Albertan remembers the grade one tradition where your child is given a sapling to take home and plant. Both my children received one.  Both planted their little tree in a chosen place in our yard. My daughter cared for her tree for a limited amount of time, moving on to her next project and the tree perished.

Zane was different. He would come home each day and nurture his tree. He covered it with a large coffee tin so the heavy snows would not break it. He talked to it, sprayed it, and fertilized it and it grew into a majestic white spruce that we hung feeders and tiny houses on to welcome the birds and squirrels.  After Zane passed, we hung Christmas ornaments and tied ribbons with wishes on it in his honor. The tree was more than a tree; it was a connection to the love my son had and shared.

At a recent community block party, our old neighbor told us of how the new owners were caring for our house in a way that we would feel good about. He went on to say how they had opened the yard by removing a few of the trees and it looked great. “Which ones?”, I asked. As he began to describe the locations of the trees they had removed, I kept pleading in my head, “not Zane’s, not Zane’s” …but it was Zane’s. I glanced at my husband as the tears came and whispered to him, “I just can’t…” and I turned and left, leaving him to tell our neighbor why his wife was a sudden mess.

Our neighbor apologized and hugged me.  How was he to know.  It was ok.  But it wasn’t. I went home that evening and cried myself to sleep. There is nothing I could have done, there was no moving this massive evergreen. The house was not ours any longer. I understand. But I don’t like it. How ironic this tree was roughly Zane’s age before its life was chopped down. It was another thing lost that was my sons. It was another reminder that things have changed forever. It was another catalyst to bringing my grief to the forefront.   

When things like this happen, we need to find hope that it will be ok.  Even when we know it isn’t.  We can look at loss from the dark or the light side.  I tend to look at it from the dark first.  I give myself time to sit with the pain, permission to feel mad and sad and hopeless.  And then when my tears have subsided, I look at it from the light side.  And if there isn’t one, I try to create one.

With Zane’s tree, I have decided to believe that somewhere on the other realm, Zane has a space that he adores and that he rejuvenates in, and that spot now has his beautiful beloved tree. Beside him. With all the wishes we had tied on it and all the admiration we have for him clinging to each needle so that he can see, touch, and feel how very much he is loved and missed.

Motherhood is a Life Sentence

Last week was Bereaved Mother’s Day.  A day for mothers who have lost a child.  Today is Mother’s Day.  A day to celebrate mothers. It confuses me as to why I am suddenly a part of two different occasions that are about one person.  I struggle with the idea that I celebrate being Zane’s mom on one day and my daughter on another day. Just because he is not here physically, in no way reduces all aspects of me being his mom. And where is the day to celebrate my role as a mom to the many other children that I also love unconditionally? Where is ‘their day’?

Although I enjoy any reason for a party, Mother’s Day is getting more and more complicated with the definition of mother and what type of mother are you and each type seems to have its own day. Are you a mother or a bereaved mother or a stepmother or a foster mother? There is a flurry of diverse Mother’s Days in a calendar year. And then there are the protestors that think there shouldn’t be a Mother’s Day at all! 

I don’t think you need to give birth to be a mother. I think being a mother is more about unconditional love. And that type of love can nurture any thing or anyone. I think the role of mother is about devotion, about care, about wanting the best.  It’s about sacrifice and sleepless nights and an ongoing worry for them. Motherhood is not a role; it is a way of life.

Motherliness begins at a young age, long before the official call of ‘mom’. It begins as a small girl developing empathy and a curiosity of how one can nurture another.  It may have begun playing dolls or taking care of a plant, a pet, or a sibling. It is fostered by a growth of patience and concern and strengthens with a desire to protect. All this creates a heart of joy and a mama bear attitude for those we care for.

And suddenly you are all grown up. And through personal experience your life becomes that of a mom. It is important to acknowledge the unique differences and challenges of the different types of motherhood.  Some moms hold a baby they gave birth to.  Some care for one that another woman gave birth to. Other’s play a role of mom to a child of a friend or relative. And some moms have four-legged fur babies they love as much. There are unique aspects and different details to who and how you are in the role of being that soul’s mom. What I think is important is the overall concept of motherhood, the conscious interactions with another living being (human or other) that causes a stirring in your soul, a tug at your heart, a desire to ensure this soul is ok. This makes you a mother. I like to think it is just that simple.  It is a gift that does not come with a training guide but with an obligation to be our best for them. For the rest of our lives.

With all the complex intricacies of motherhood, I don’t need two or more days to acknowledge this responsibility and my part in it. I receive confirmation every day. A collective and special holiday for moms is great but I don’t need two. One day is just fine. 

A Coliseum of Grief

My husband took me to see Matt Fraser live in Edmonton.  It was a one-night stay that started at the picturesque Fairmont McDonald, where we sat in the afternoon sun with friends, drinking and sharing appetizers. A lovely few hours enjoying each other’s company and celebrating my birthday. I shared with them my excitement to see my favourite psychic.

The casino where Matt’s show was at was filled with hockey fans, casino players and people like me, hopeful to have a visit from a loved one from the other side. We enjoyed a drink before the show and met two women, who kindly shared their table.  They were also excited to see Matt and told us the story of their aunt who had departed. They asked who we wanted to see.  I said my son. As they left, one woman said to me, “I hope you see your son”. And it hit me.  We were all there for the very same reason.

The show was sold out, as were the previous two nights. The concept that thousands had paid money to sit together and potentially share their loss with hundreds of strangers was magical.  Each person attending was wishing for a visit, reassurance that their loved one was ok, that they were still here. Every single person had the same request. Every single person was in pain. Every single person came with hope. And the need to have Zane visit through Matt diminished. The comraderies of my fellow grief warriors were comfort enough. The understanding that the Universe was in control that night filled me with a peace that enabled me to “sit back and enjoy the show.” And that is what I did.

Matt did not disappoint. His readings were accurate, and the messages eased the receiver’s anguish. We laughed and cried together. There was a communal ‘oh no’ when Matt approached a woman whose boyfriend had been murdered and her baby died just after. The heart ache of loss was collectively felt. The readings were individual but the main theme that the deceased are here, watching over us, was a reassuring message for everyone.

It was a slow exit because of the vast amount of people. As we shuffled forward, a couple asked us how we enjoyed the show. He said he was not a believer and that his wife had dragged him to it. I asked who it was that they had lost. It was their daughter. 8 months ago. She was 29. The mother started to weep. I stopped and hugged her. “I am so sorry for your loss”.  He asked who we lost. We told him. And a hush fell upon us as we continued to walk, holding each other up.

This event did have a personal message for each attendee. Perhaps not from their loved one directly, but from the aura of the hundreds of souls surrounding us.  A sense of belonging, a whisper to look at the strength of each person there who lives with their eternal grief but who refuses to diminish the value their loved one had and still has in their life. The desire for connection. The innate ability to carry on. We were a part of that.  Zane was there with the other souls. The invisible electricity of so many together in the same room from both sides of the veil was an experience I had dreamed of. We were a part of a coliseum of shared grief. And of love.

Moving Into The 60’s

My 50’s brought with them the promise of becoming more of my own. The children were older, the husband was working at a job he enjoyed, and I was discovering that I belonged on the totem pole; self-care was not an option but rather a healthy lifestyle for me. It came with a celebration, Hawaii style and 50 different bottles of wine to enjoy. It came with the desire to travel and see family more often and to hang out with friends.  It came with the expectation that I was at a point where I could enjoy life more.  It delivered some of that. But the things that my attention focused on were none of those gifts. My 50’s became a battlefield. 

Of course, there were happy times and cause for celebration. Yet, my vivid memories of this era are a myriad of health issues, big struggles, major changes that I did not want or ask for and left me in the middle coping with the loss of my son. It ended with the loss of more family and friends. It ended with me battling breast cancer. My 50’s became very dark for me.

As I approached this golden year, I was told by someone special that I have created a culture of a bleak, whoa-is-me, an attitude that is anything but fun and bright as I am described to be.  Ouch. And yet, so very true. I wake with the desire to enjoy my life, but go to bed totally frustrated and exhausted, and I repeat this every day like a bad Groundhog Day movie vibe.

So how do I greet 60? How do I expect anything different or better? We are all getting older. Health challenges will be a sure thing. I am going into a new year, a new decade, without Zane’s physical being. I am only sure of one thing; I don’t want a repeat of my 50’s. I need an attitude adjustment. And where are those for sale?

Agreed that change is my only salvation, I started my 60th morning in Canmore, running into my sister’s room, jumping on her bed, and yelling like an excited 6-year-old, “It’s my birthday!”  I then poured coffee and indulged in a second cup with extra cream. I texted my husband to say, “you pick the place to celebrate my birthday dinner at. Here are my choices.  Surprise me!” Then, after my sister left, I did a little work, closed the books, and poured myself a glass of wine, enjoying the silence and listening to the magic of the mountains, alongside my son’s spirit.

The evening was splendid. Hubby, daughter, and dog came to join me, and the restaurant Jon chose exceeded our expectations. Day one, done and it was blissful. I know each new day will not be as peaceful or as happy as this day was. However, I consciously brought into the day things I enjoy and tried not to control every detail.  This combo delivered a day of gratitude. 

I am going to bring this practice into my new year. I am going to insist on a better balance of work and play and solitude. I am going to spend more time with those I love in environments that suit me; planning events that are fun for me.  Maybe, if we fill our life with things we can look forward to, perhaps they will balance the inevitable things we don’t like.  Next week I am off to Edmonton to see Matt Fraser, medium extraordinaire and just maybe Zane will be there!  My 60’s are looking up! 

The Technicalities of Death

If this year has taught me one thing, it is to get your estate in order. I have watched and experienced the drama of having last wishes incomplete and the bedside requests of those dying ignored by those who are grieving. I have also experienced firsthand how difficult it is to honor those wishes and expectations when the dying have left their desires to chance by not having all the details clearly outlined.

I was enjoying a wine with a girlfriend and sharing the troubles and minor details that we are experiencing in helping execute our friends last wishes. I asked her who was the executor of her will.  It is her sons. With us, we wish our daughter to be. And so, I shared with her what I am learning that needs to be put into place to make certain that if your child is grieving the loss of their parent, the role of executor does not become a daunting task that can complicate their grieving process. Let’s spare them that.

If you have had a previous marriage, keep a record of when you were married, when your divorce was finalized and the names, birthdays, and place of birth for each child you had within that marriage. I knew my friends had previous spouses…did I ever care when they were married and divorced? Why would I? But now, I must know to proceed with the completing of their will.

What are the credit cards, and the amount owing.  None of my business!  Oh, but it is. Each credit card must be submitted with a final balance. How many air miles did any of them have? Why, I thought.  They don’t need air miles to fly about now, they have angel wings! What were any outstanding loans? What were their investments? Were they joint, what type of account was it? Who do you call to close these accounts? And what the heck are their passwords? Nothing opens, even the phone, without a password.

What about their home? What expenses need to stay in place while we prepare the house for sale on their behalf? Who pays that? Did you know that certain expenses are permitted to be paid through the estate but renovations to upgrade are not? Where do their belongings go and how do you decide when more than one claims it was to be theirs? How do you be fair to the living while honoring the trust that you have been given to do the right thing. We continue to learn.

These technicalities are part of death.  They are the task list you delegate to someone to do on your behalf as part of your exit plan from this realm. I have come to realize that it is one of the most important things everyone, regardless of age, or health, needs to do to confirm that their wishes will be carried out and with minimum stress to the person with the task of doing such.

Thank God our friends had shared most of the needed information with us before they left. Even with that, we have had a few surprises and some detective work still to do. I said to my husband, “can you imagine our daughter having to figure this out during the bleakest time of her life?” The sheer thought of putting that responsibility on her has me screaming.

This has encouraged me to update our wills and attach a list of things she will need to know. And I have made her a promise that I will update it yearly so that if she needs to execute my last wishes, she will have all the answers. And I will have it so ironclad tight that there will be no room for misunderstandings. This might be my biggest gift to her. And I hope I don’t have to give it to her for decades.   

The Message of Easter Spring

It was Easter that both my Godfather and father died. The next Easter weekend we bought the kids a lop-eared dwarf bunny. Zane said, “we should call him Sensei.” I said, “well, let’s see if he likes that name” to which Zane replied, “why wouldn’t he?” So, Sensei bunny became a member of our family for 9 years. The Easter season seems to bring to our family entrances and exits.

Dear Zane:

Remember how much you enjoyed Easter? Do you remember how excited you were each Easter to find the hidden chocolate and presents? Payton still does this, every year. Roydon now hides eggs all over their condo. He does a great job.  They have enough candy to last them the year!  I do my own version of a scavenger hunt for her. I remember you telling me that you were done with Easter egg hunts but let’s pretend you aren’t because Payton likes them still. Always the big brother.

The Easter after you left, you visited me in a dream. You told me Easter brings with it a magic. I must pay attention to this season. It has meaning. And each year I have thought of that, waiting for something to occur that would make sense. I might have missed things in the past, but this year, the meaning shouted at me.

As you know we lost two more of our tribe this season. The grief has drained each of us and our plans to soldier on were cancelled by Universal influence to slow down and just huddle together this year. And this has brought an awareness, I know now what you meant. This is what you came to tell me in my early grief. Your message, a reminder of the meaning of Easter. The message that gives us faith and hope and strength. The message you knew I needed. And still do. The meaning of Easter is simply, those we love do not die.

Easter brings with it the guarantee of warmer days. You were joyous about this as it meant to you that patio drinking season was nearby.  The Easter season brings with it all the magic of rebirth, all the signs that life goes on. All the sights of energy revitalizing. This is perhaps why you loved spring on a spiritual level.  It truly is a special time of the year whatever your religious beliefs are. Boiled down, Easter is the promise that life carries on. Thanks for the message.

« Older posts Newer posts »

© 2024 Good Mourning Grief

Theme by Anders NorenUp ↑