A blog about my adventures as a grief warrior

Tag: #grief (Page 5 of 9)

Connecting Through Shared Stories

This past Super Bowl was a party at my daughter’s home with friends whom she inherited from Zane. It was the first bittersweet event of the year. It was a wonderful afternoon, each of us wearing our favorite team, bets placed, comfy chairs and lots too eat and drink. It was missing only one thing.  Zane.

Zane had a close group of friends fondly referred to as ‘La Familia’. When Zane was killed, his friends adopted our family, bringing us in to be a part of what Zane loved to do and who he loved to be with.  We all feel very lucky for that.  We have been invited to birthday parties, BBQ’s, holiday events and social afternoons. We know the invite comes to us out of respect for our son. (The picture above is one of the many get togethers with some friends to share stories).

When you lose a child, their friends become an important connection.  They share stories of adventures that you might not have known about.  They hold a different perspective of our children; they were friends, not parents or siblings. If given the opportunity to sit and talk with them, take it!

Listening to shared experiences they had with your child is no easy task. And watching these young friends live the life that your child was robbed of is painful. I am secretly dreading the upcoming weddings and children of their own that will fill their life with love. And yet, I want to be a part of their happiness. I want to know more about my son’s life and hear how he affected his friends lives.  These are the people that he chose to spend his time and energy with. Getting to know them, brings another dimension to who my son is. I want to hear his name and his friends are happy to share. It is a blessing that causes tears and smiles.

I was standing in the kitchen during half time and one of Zane’s closest friends came in to hug me. He said, “can’t you feel him? it’s like he is here with us” I agreed.  He hugged me and when he pulled back, he said, with tears in his eyes, “I just really miss him…” “I know, sweetie,” I replied and hugged him again, “we all do”.

That evening I realized that maybe there is more to his friends including us than just out of respect for Zane.  Perhaps they too feel that connection, through his family, that closeness to him.  They too hear a different perspective, different experiences that we know of that Zane had not shared with them. Together, as a group, through conversations, there develops a well-rounded image of all that my boy was.  And with our conversations continuing, of the person he will always be.

Getting Outside of Your Head

I had a pity party this week. A work meeting went sideways, demands of a new program, an extra project thrown into an already packed day had me driving in my car cussing at how unfair life was. As I pulled into the parking lot, I received a text from my sister.  “Hey sis, which one do you like best?” And four pictures followed.  Each, a different urn. I realized she was at the funeral home, arranging for her husband’s death. I started to cry.

In life, and very common for grief warriors, we tend to focus on what we don’t have, what we have that we hate and what we want that seems elusive. This thought pattern stunts our ability to see anything else; the good, the bad and the ugly of other things happening around us. I am not critical of this.  The truth is we have been given the short straw and there takes an energy to care for others that we might not have.

One of the ways to deal with grief, we are told, is to volunteer.  To get outside of our own head and thoughts by helping others.  Research shows that volunteering increases empathy, distracts your grief and makes one feel good. I know, it’s what I sell in my job, the positive impact of volunteering. I also know, that living with grief, this desire is difficult, if not, sometimes, impossible. 

How do we show up for others when the day-to-day tasks of work and life make it impossible to show up even for ourselves? I wonder if we started with those close to us.  I wonder if we could muster the energy to reach out to a relative or friend or neighbor. A text asking how they are, or a loaf of bread dropped off with a note saying, “I’m thinking of you”. These small acts can be planned around our energy. They take not a lot of effort or commitment to ‘get outside’ of yourself and yet they connect us, and we feel good that we have noticed those we love.  We feel good.  In thinking of others, we also help ourselves.

Living in my own mess, the fact that my sister is living with anticipated grief, took a back seat to the mundane trials that will not be important nor remembered years from now.  What will be remembered is me showing up for her pain. I must plan for this. What energy we have is dictated by a lot of factors, how we use it is our choice.

And with that aha moment, alone in my car, I replied to her.  “I like the 3rd one.”  I finished my day and went home to make a pot of comforting chili to which I dropped off to her door the next day.

Finding Your Truth

I have been inclined to defend my thoughts and actions in the past while to current times or more specifically that grief has turned me into a bitch. I have become less tolerant; I say no more often, I exercise boundaries more often and feel less guilty about it. I am starting to practice self-care, still being kind to others but also to myself.  I am looking at my life as if it were in a petri dish under a microscope and what I like I want more of. What I don’t like, I am losing patience with keeping around. It is a new and scary feeling.

I was told in grief counselling that around the 1.5-year mark after a child’s death, mothers begin to ‘find their voice’.  We have been stripped of every ideal reality, every role we know of and are left to start again.  Within this, it is common for us to find our truth.

Part of this finding involves the grief bursts and rage bursts. We are out of our body with grief. This is normal and practicing grounding is a suggested technique to help. It is simple and can be done anywhere without looking crazy.

Stand with your feet slightly apart and solid on the ground. Close your eyes. Feel the ground under your feet.  Know the ground is solid, you are touching it, connected to its hold. It will not let you fall.  Feel your energy flow through your body and down into your legs, your feet and into the ground, tying you to its earth. Feel this strength.  It is calm. Solid. It can carry you. Breathe.

I practice this exercise lots. I find it works; the angry energy, the silent scream from inside travels through me and into the ground where it is soaked up and contained.

As we put into place new practices to survive, there is solace in knowing that we are not crazy. We are given permission to try new things and change it up to create a warm, comforting environment that supports our pain. We have permission to reflect on what we want, what we need, and how to change to receive that. That is enlightening.

I wrote to Zane about this.

“…so, we don’t really become bitches as I thought. We develop this gentle but firm presence, a sort of this is who I am take it or leave it attitude. All things you wanted for me.  How ironic… so, I have chosen to look at this upcoming transformation as another gift from you.”

I am curious, who I will become when I find my truth. I do know that it will be centered around what Zane had hoped for me and what I had hoped for him.

Tattooing Grief

My daughter has over a dozen tattoos.  Each one I would complain, “how can you do that to your body, you know it stays there forever”.  To which she would retort, “my body is my life canvas, I am painting it”.  Working with youth, my theory was (and still is) that tattoos are a way of expressing emotional pain.

Each year, since Zane was killed, I find myself at the table of my beautiful tattoo artist. The first year, Zane’s words, telling me he loved me were imprinted into my forearm.  The second year was a feather on my ankle (a touch up of a teenage tattoo that I have regretted and wanted covered) and the third was an outline of the kids and I when they were younger. I have this year’s tattoo picked out.

A fellow grief warrior shared with me that she has a plan for not one, but two tattoos in honor of her son. She never had one before and didn’t really like them.  She was perplexed that she wanted any, let alone two. I shared my story and she asked why do we feel an urge to do this?

I believe it goes back to my original theory.  We live in emotional pain and a tattoo is a way of expressing to the world, “I carry loss”. The desire for a tattoo is common amongst those in mourning. I have come to believe that the choice of getting a tattoo is not the point, but rather the choice of what would you like inked for eternity on your body is.  

What message do you want it to say?  What do you want it to represent? Of course, it is about our loved one so it should contain something that they liked or were like or reminds you of a certain characteristic of them. I believe where it is placed is important, especially if you plan for more.  (And I have found never say never to that idea!) Certain body parts are more sensitive like your ankle or rib cage where the skin is thinner so a smaller tattoo in those places might be preferred. Angel wings, butterflies or other mystical, message-carrying guides are also common to incorporate in a memorial tattoo.

Color is important. Bright colors bring a different energy than a soft watercolor or the subtle tones of grey.  What was your child’s favorite color? What colors bring you a feeling of peace? Imagination and Pinterest are your friends as the ideas are infinite.

For me, there is no plan to stop this tradition, which I do each year before or on the day he was killed. I have told my family that it is something I feel I NEED to do and one year I might wake up and say enough.  Until then, this ritual brings a weird calm; an annual testament letting the world know, “I am in pain”.  And to Zane, it states, “I will never forget you.  You are always with me”.

Packing My Invisible Suitcases

Since my brother-in-law’s grim diagnosis that the cancer has spread, he has gone back to work. And not just a nine to five shift.  No, he has submerged himself, literally locked himself in his office to continue working against his doctor’s advice to quit his job and enjoy the last few months given to him. Classic denial.

In grief, denial is a stage we all experience. My brother-in-law could be spending this time writing letters to his wife to receive after he is gone. He could be mending fences with his son. He could be resting in hopes that taking care of his health might grant him extra time. Denial has replaced all these opportunities with the need to work rather than face his sentence. I get it. If he doesn’t think about it, it won’t happen.  If he works hard, time will fly, money will come in, needed money to leave his family. It is almost heroic. It is also small picture. This is the sadness of denial.

I have often said that denial is the stage I could live in. It is a stage that protects my heart from the truth. It is a stage that allows me to ignore my hurt and bask in the concept (the hope) that this is not my reality. The reality that there is nothing you can do to change it. Denial shouts inside of you, “THIS IS NOT HAPPENING” as if this scream could change things.  It is loud and upset with God. It keeps me from looking at the big, ugly picture. This is the anger of denial.

And so, when I watch my brother-in-law, I understand. He is living in the stage I go to when the pain is too much.  I am patient with him. This is something he needs to wallow in; the denial of the truth that he will not grow old with his beloved wife. I get it. I just hope that he wants to examine his reality, if even for a couple moments, to ensure that when the time does come, he is leaving this realm personally satisfied in how he spent his last months. 

I selfishly want him to leave this denial stage for just a bit.  There are so many things I want to talk to him about before he goes. There are questions and shared memories and more laughs I want from him before he goes. Knowing he does not have long, I have invisible suitcases that I want to pack full of memories, conversations, understandings that will sustain me after he is gone.

We are told time is not on our side. Who really knows. Past the denial, he is ultimately aware of this. I must remember, this is his life, his time.  I must respect how he wishes to spend it. So, I pack my invisible suitcases with all the love and fondness and the gratitude I have for him; folded next to all the things I want to say to him. When he is ready, I will open it up and share.  And in the sharing, I hope for more memories with him to add to my suitcases. Alas, if time does not give me this, then I will open my suitcases in ceremony to share with the heavens. And that will have to suffice.

There is No Boxing Up Grief

It is boxing day. I had thought I wanted to shake up this holiday and it happened. Christmas ended with my daughter going to see her fiancé’s family after giving us a gift to go enjoy the night in Canmore. We took the dog. I drove.  It was -28. We found Famous Chinese Food open and shared a dinner for one in our room. We had wine and magazines and appies (previously packed in Calgary to accompany our adventure). All in all, a nice night.  Different. The mountains are always a soothing sight and the fact that Payton wished this for me was a gift.

I received some wonderful gifts this season. Among them was a gift from Alyssa.  This thoughtful young woman dated Zane and remained friends with our family after Zane was killed.  She is the one that filled our home and albums of incredible photos she and Zane had taken on their adventures. Last year, she gave me a framed print of Zane and her sitting on Santa’s knee. This year, she posted a ‘live picture’ of Zane. We could hear his voice and see him smile as he turned in the three seconds of time this photo carried. It was alive. We all enjoyed this gift.

In Canmore, I took my phone out after Jon and I had retired to bed and played this picture.  Over and over. Hearing his voice, seeing his gentle shy smile.  He was enjoying that day.  I began to think of how many days he enjoyed, his adventures with his camera, his friends, the girls that he loved. And my grief came crashing into the room to sit next to me.

I know I am a proponent of taking time out to feel your pain and reflect, meeting your grief face to face. However, on the very cold Christmas night, huddled in the silent room, the hustle of the season faded away, and left me sitting in the middle of a lot of memories of holidays past. My reality became very loud. My holidays are no longer filled with his incredible laugh and tight hugs and no matter what I do to ease the pain, the holidays seem to bring it bubbling to the surface. I know this. We all know this.  It is why the holidays are dreaded.

I remembered what we learned about grief bursts. I took a deep breath and closed my phone. I took another deep breath. I poured myself a tea and pet Tango. I curled up with a pillow and reached out to my grief friends online. “Thinking of you…” And then I talked to Zane. “Would love a visit; I know you are here but send me a sign. I am really missing you right now”.  I took out a magazine (another gift I received) and started reading it, letting my mind fill with health tips and new recipes to try. And I nodded off to sleep.

We know things don’t get easier; we just grow stronger with practice.  And the holidays offer us lots of practice! We shook things up, tried something new.  And it was lovely overall.  What I realized is, although I don’t want, I need distractions at the holidays.  I was reminded that grief travels with you. Santa can’t bring me the miracle I want. The ghosts of Christmas past will show up.  I am not surprised by these understandings, but I am a little saddened. And why I think next year I will choose noise and a movie. Distractions have their place. Christmas is one of them.

The World Lights a Candle Today

Oh, how the heavens must look on world candle lighting day

The billions of tiny flames, lit by those grieving

Small lights flickering towards the sky, waving to you,

As a symbol that we remember, our love is eternal.

Do you see it?

Do you gather there, like we do here,

As we look up, are you looking down?

As we stand by the little light of love,

Do you see the tears, the pain, the emptiness we feel?

Does the candle bring that message with it,

Because that is part of it; you are missed.

Do you feel the warmth from the light of this candle,

Like the warmth of the love, we have for you

That grief cannot take away

Does its scent bring memories to you of our times together?

This candle, this small beacon, sending a message to you

In its flame, of hope that we will continue to share life

In some other, estranged but meaningful way

We will still have moments together,

There will be laughter, amongst the tears.

I believe you see the lighted candles,

The message is received, and you reply to us,

With your own candle, lit from where you are,

We see as the twinkling of the stars

Which send a message of assurance,

“Mama, we will always be connected”

The Arrival of Anticipated Grief

I’ve been watching my sweet little dog start to stumble as we walk, and I realize he is closer to the “rainbow bridge” than I want.  Or need him to be.  He has been the lifeline for me, for 15 years, especially after Zane was killed. I expect him to live to a ripe old and unrealistic age of 40. At the same time, my sister calls to share that her husband has cancer. The doctor has told them there is nothing they can do. In his professional opinion, he has another six to nine months.  This is the arrival of anticipated grief.

The magic of anticipated grief gives you a false sense of security. Shock, mixed with a bit of denial gives you the impression that you have more time. I mean the dog still runs like a puppy and my brother-in-law still goes to work. They look ok. For now. The beginning of anticipated grief is the sense that everything looks ok so must be ok.  We still have time.

The hope of anticipated grief brings an illusion that this is not happening at all. I mean they are still here.  Both dog and brother-in-law. And we have learned through painful, firsthand experience that the only true expert to dictate when you check out is God. It is this hope that anticipated grief dangles in front of you like the golden carrot.  The conversations become what if and what can we do and is this true. How can this be right?

The beauty of anticipated grief is that it gives you the luxury of planning. As my sister and her husband go about the daily routine activities of life, there is time to think about the afterlife.  What do we want for a funeral, what bridges might we mend before we go, are the wills in order?  This gift of time enables you to prepare for things that must be handled, that if you were dealing with a sudden death, they become priorities and not a lot of consideration to choices. My brother-in-law has a say in what he would like to have included now and after he leaves.

The agony of anticipated grief is that you know it is coming to stay. When I think of my little dog not here, I pick him up and cuddle him. As a sort of way of telling grief, “See, you cannot come, my dog is here, go away”. And yet, my heart knows that there will come a day, when it will be grief’s turn to say, “I’m sorry for your loss, I have come to live with you.  Again.”

The Tipping Point of Grief

With the donations that my work received, in honor of Zane, we agreed to create a community project that would benefit youth. We chose mindful photography because of Zane’s passion for taking pictures and how he believed that getting behind the camera reduces anxiety and improves mental health. There were many people along the way that made this happen starting with a close friend who creatively named our course #zaneography and single handily arranged all the pieces to make it happen.  Last week I attended the wrap up of the first class.  I was not prepared.

I sat on the sidelines watching the beautiful, skilled facilitator talk about the pictures that the youth had taken. Her words were kind and motivating, capturing the blossoming talent of each participant. She had printed their work on a black background and had them hanging on the wall. The participants showed pride and commented on how they enjoyed this experience and how they want to continue shooting pictures. Oh, how my son would enjoy hearing this.  And perhaps that was the tipping point of my grief burst.

As the youth chatted over pizza, I stood up and went over to take a closer look at the pictures.  They all told a story, illustrating the lessons of using dark and light that they had learned. One photo, taken by a youth that I felt had a similar energy to Zane, took a silhouette picture of himself under a lamp pole. It captured the light and mood perfectly and it reminded me of pictures Zane had taken of himself under a streetlight at a construction site.  And perhaps that was the tipping point of my grief burst.

I said my goodbyes and the facilitator hugged me. As I held her, I thanked her for her very large and important part in making this happen and I realized just how this desire to honor my son was something that I had not been sure would ever happen.  And perhaps that was the tipping point of my grief burst.

I left, barely getting to my car before the tears came. Sitting in my car, sobbing, the pain of my son not being here to take more photos, to enjoy another adventure of finding the perfect subject, the perfect light to capture a moment. Oh, how he loved photography.  How the camera soothed his soul and excited him to find new ways to look at life. I sat crying and shouting to God where was his justice until I was hoarse.

We are taught to honor our children.  We are told that good mourning is about finding ways to continue to do what they loved. We are told of the importance to share their passions with others; to remember them through the sharing of what they enjoyed in life. What they didn’t tell us, or what I seemed to have missed, is the pain that comes with this. The sharing, experiencing first-hand what they loved without their physical presence is the tipping point of grief bursts.

The ‘bitter-sweet’ they call it; happy to see it happen but sad that your child is not a part of it. That part.  It has a cutting edge to it that does not comfort you but rather slices you open to reveal the pain and injustice of your life. It is raw. It is painful. And yet, would I change it?  No. Because the other thing we grief warriors have learned is that the pain of grief only equals the love we have.  And for Zane, there is a whole lot of love.

Goodbye, Excalibur

This week we lost and buried another family member. Excalibur, my daughter’s leopard gecko died peacefully, surrounded by family. I know it was ‘just a lizard’ but this little guy was with us for 13 years.  As Payton came and went with her busy life, mama was left to tend to him, feed him and enjoy him.  We were told years ago that he would not live long as he refused to eat anything but dead worms.  They are like a chocolate bar the vet told us.  He must eat crickets.  But he would not. And I was ok with that as the whole non-vegetarian diet creeped me out.  I could handle putting a small dead worm on his plate and watch him gobble it up.  Easy. He loved to sit on a cushion beside you; he did not run around or away.   He reminded us very much of the gecko you find on the TV ad. He carried that much personality in his 6-ounce body!

Our pets, regardless of its type, are family members.  They experience life with us, and they become part of our routine. We have memories of shared times with them. We love them. When Excalibur passed, I packed up all his belongings and cried for two days. I would wait to hear him at night and then remember he was gone.  I would go to turn on his light and he was gone. Gone, bringing grief to the forefront.

I have been sensitive all week.  I have been unfocused and not much got done. I am aware now, with the experience of loss, that I am grieving.  And I allowed myself to do so.  I cancelled meetings and took a drive to Canmore and sat in the park.  The grief of losing Excalibur just adds to my already broken heart.

As he was a pet who lived to an old age, I will not ponder on the events and experiences he will miss out on. I will remember how he made me smile and will not burst into a flood of tears over it. I do not feel cheated as I do with the deaths of other family members. That is the complexity of grief.  With every loss, you feel it, but the intensity can be different. Grief can come in soft, more melancholy at times. I guess it depends on the circumstances.

We hosted a small memorial for Excalibur.  Just our family, with Zane watching over.   Payton somehow found a bit of peace knowing that her gecko’s spirit was now free to roam the realms with her big brother. I came home to feel his absence. And ponder how could I honor this sweet little creature that brought so much love to our family over the years.  Rest in Peace, sweet little gecko.  And know that you brought such joy to each of us.  A life well lived; you will always be in our hearts.

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