A blog about my adventures as a grief warrior

Tag: #griefandgrieving

A Letter to The Friends of The Grieving

At a social event, our friend who was just diagnosed with a brain tumor, had a person come up to him to acknowledge they knew of his condition. This person shared a story with our friend of their experience with a family member, also diagnosed with a brain tumor. It was a grave and pessimistic story that ended with she died. Our friend stood there, soaking in what he had just heard in absolute disbelief. Then, he pulled himself together and went up to this person and told them that this is not what anyone with cancer (of any kind) needs to hear.  He concluded saying, “don’t tell that story to anybody else ever again.”

When our friend told us about this, we laughed. Good on him to have the courage to reflect and then act, replying with a direct WTF! STOP. YOU ARE NOT HELPING. We laughed because it’s how we would all like to react. The truth is, whether it is the loss of a loved one or a terminal diagnosis or a major life challenge given to us, grief arrives. And we are learning how to handle that. Yet, we have all experienced some well-meaning person give advice, share a story or give comments that leave us dumbfounded of how utterly far they are from truly understanding our reality. And in our grief circles we talk about this.

We also talk about the why such might have been said.  We know it comes from the heart.  We understand that this person means no harm. They are trying to relate to our unrelatable. I have said many times, it is us, the grief warriors, that need to educate those trying to support us. If I could hand out a letter to folks, when I began my grief journey, it might have looked like this:

Hello,

I am grieving and you are aware of that. I know you wish to help. In my confusion of what I am living with, it is difficult for me to know exactly how you could do that. So be patient with me.

Recognize my grief. Acknowledge you are aware of what I am living with. A simple, silent hug is usually best. Or tell me, “I’m sorry. I’m here for you.” Please don’t continue with how my loved one is in a better place or this is God’s plan for me.

Converse with me. I don’t want to be the elephant in the room to which everyone scurries to another place in discomfort. Smile at me. I am dealing with grief; I can still be capable of some social interaction.

Ask me not “how are you feeling” but rather “how are you coping” or how is your grief today”. Each day will be different for me, and I don’t want to feel like I need to say I’m ok when I’m not. If my reply is negative, I’m not asking for ideas to fix it. I’m asking for understanding. Reassurance that you are here if I need anything will comfort me.

I may want to talk about it. And all I want you to do is listen. I don’t want to hear comparative stories. I want you to just sit with my pain.  To be comfortable with my tears.

If my grief is loss, I want you to talk about my loved one. Say their name. Don’t be afraid to upset me. I am already, will always be upset they are no longer living on earth. Hearing their name, sharing a memory about them lights up my day in a bitter-sweet way that I treasure.

Never judge where I should be in my grief. My grief is here to stay. My brain is learning how to accept my new reality. My heart is learning how to beat around this massive hole it has.  Time does not exist within these lessons.  

I am not my old self; I am becoming someone new. That is the uneasy and difficult part of grief. You and I wish that I could be the same, but that is not to be. My soul is learning of who I will become with this grief. You too must be strong and accepting of the new path to which I have been forced to travel.

“On Grief & Grieving” by Elisabeth Kubler-Ross, MD & David Kessler

Dr. Elisabeth Kubler-Ross is a legend in the grief community. She is the one who taught us of the 5 stages of grief. We first believed that you went through each stage in an orderly fashion, ending up with acceptance. We now know, and she admits, this is not the case. We live within these 5 stages for the rest of our lives.

In her book, co-written with David Kessler, “On Grief and Grieving”, the two give us support in finding the meaning of grief through these stages. Each stage they illustrate the effects on the griever with shared research, stories, and reflections.  It makes for an easy read. 

Anger, the stage we visit most often is really the easy one to deal with as it covers all the other deep feelings. Anger comes in many different forms. They share a story of a client (Keith) whose son was randomly shot at the age of 17. At the parole hearing, the killer’s father, visibly upset his son was denied parole and would continue his life sentence, Keith realized that they were two fathers at each end of the gun and his anger changed to curiosity. This helped Keith with the anger of his grief.

They speak of how regrets will always be a part of grief, no matter the details of the relationship or the death. It is never too late to say how you feel, to apologize if needed. They write, “We often make the mistake of thinking all communication ends at death.” This sentence gave me comfort.

They speak of the importance of taking your time, trying to be present at the funeral (which how would you know pre-death?  Great advice, moving forward!) They write about how it’s ok to give up your loved one’s possessions or never give them up…grief is yours to own. And they speak of how we come together as a community when there is a death. Public deaths, like John F. Kennedy, we feel connected, we feel we were ‘there’ and yet we live in a society where the deaths of our own community are rushed to get over. This hurried sense of you must be ok, the need to move on does not honor our loved one’s or ourselves.

Their message is that to grieve and grieve well, we will live well. That grief is the healing process of the heart, soul, and mind. It is not will you grieve; it is when will you grieve. “And until we do, we suffer from the effects of that unfinished business”. Good advice from the Doctor and her co-writer.

This book is a classic for anyone grieving. It is a confirmation of what we know. A reminder of what we need to do and a source of hope that we will survive. Broken heart and all.

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